Ehlers-Danlos syndrome is an inherited disorder that is transmitted from parents to their kids and sometimes it can sporadic (a case that doesn't run in the family). There are different types.
The treatment is symptomatic and so treated according to the particular manifestations:
- skin protection from trauma
- careful wounds therapy and prevention of infections- suturing can be difficult
- joint injury must be avoided
- we encourage exercises to strengthen the muscles and support the joints
- sometimes bracing to minimize joint mouvement if necessary
- avoid contact sports
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It is recommended that all individuals see a Family Doctor for a full medical examination annually. Adults should get their blood pressure checked (US Preventive Task Force), a flu vaccine (CDC) and more each year.
The American Dental Association recommends dental cleanings for adults at least twice annually. Some stains can only be removed by a professional cleaning.
It’s recommended by the American Academy of Ophthalmology that every adult between the ages of 18 and 80 does an eye examination at least once every two years.
It's recommended by the American Cancer Association that every adult between the age of 20 and 80 does an annual skin screening by a licensed dermatologist.
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